Hudson’s Heart

Today R2M brings you a story about Hudson and HLHS (hypoplastic left heart syndrome). Hudson was born with half a heart this July and has already endured an open heart surgery. Amy, his mom, was such a great mentor and Christian example to me when I started college. I will always be grateful for her witness and hope you will support their family with the purchase of a t-shirt.  Shirts will be for sale until November 12th and you can get one here. You can read more about Hudson’s journey on Amy’s Blog or Facebook page and don’t forget to wear his shirt and be #HudsonStrong on the next open heart surgery day. Thanks in advance for your support – Traci

A message from Amy:

Sitting around a conference room table is a familiar place for me. I’ve done it for years for my job but this was a different experience that made me sick to my stomach. Once again my husband and I were talking to the brightest minds in our country about our son’s health and the news was very grim. They couldn’t even give us statistics for survival as they had not seen his specific case before.

Meet our son…

Our incredibly precious and strong baby boy, Hudson Sylvestre was born six weeks premature on July 17, 2015 with a condition called hypoplastic left heart syndrome, meaning he only has half a heart. With just two days’ notice, our family had to leave our home, jobs, church and family in North Carolina to relocate to Philadelphia to save our son’s life. In addition to his congenital heart defect, Hudson has also experienced several other life threatening conditions that required intervention even while in the womb.

In the delivery room the doctors offered for the hospital chaplain to come and quickly baptize our son and a photographer to get pictures in case we weren’t able to see him alive. To everyone’s surprise Hudson is breathing on his own after going into cardiac arrest and then being on life support.

Hudson has undergone open heart surgery and liver surgery as well as suffering through a life threatening infection in his stomach two different times.

Our Hudson is an incredible fighter and is now three months old and in the cardiac intensive care unit at the Children’s Hospital of Philadelphia (CHOP). He will remain under CHOP’s care until he is big enough for his second open heart surgery which means we will be away from home for at least several more months. We are so deeply thankful for the expert care he is receiving.

There are not sufficient words to express our gratitude to God, to the many family members, friends, churches and even strangers who have cared for us during such a painful time. Strangers have welcomed us into their homes, loaned us cars, donated food and funds. We love our sweet Hudson so much and we would have already been devastated without the support of others.

We ask you to join us in prayer for Hudson’s life and health. Thankfully he is stable now and is such a cutie. Check out his cheeks!

Hope lives here!

Hudson

Romans 5:3-5

We rejoice in our sufferings, knowing that suffering produces endurance,  and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.

I’ve often said that if tears healed babies, our son would be whole. In support of Hudson, you can wear a RED #HudsonStrong t-shirt on the day of his next open heart surgery. Thank you again with grateful hearts – Corey, Amy & Big brother Graham

Hudson’s Video


 

I thought readers might want to know more about HLHS so I took a few statistics from CDC and CHOP:

  • About 1 in 4,344 babies are born with HLHS in the United States each year
  • HLHS is a type of congenital heart defect (a defect present at birth but may be found during pregnancy)
  • The underdeveloped left ventricle is unable to circulate blood to the rest of the body
  • Refined reconstructive surgeries have increased the overall survival rate over the last 30 years

 

If you would like to share your story please click here. You can follow R2M on Twitter @Traci_R2M or like us on Facebook.

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